Saturday, January 13, 2018

Dealing with Loss

This may be the most difficult thing I've ever tried to write. And if you're reading this, I finally hit the "publish" button.

I will be the first to admit that I've lived a pretty charmed life when it comes to loss. Until losing my father in 2016, I'd never known any profound sadness and had never even remotely felt any depression. In fact, there are many times I wrote about my extreme optimism and my feeling that I might not even be ABLE to be depressed. I think that may be one of the main reasons it took me so long to realize I wasn't just dealing with depression associated with grief. I honestly thought that once I got past the one year mark I would start to come out of my funk. I was wrong. It got worse and there were days that I would only move from my bed to make sure my mother was taken care of and had something to eat. Then I would head back to my cocoon  so I could hide from and protect myself from feeling anything but the dull ache in my heart.

At the end of March, my 18 year old nephew was taken from us suddenly and the nature of his death was fairly violent. Instead of falling deeper into depression, I was suddenly out of my funk and moving with a purpose again. I knew I had to live every bit of life that I had because my nephew no longer could. I felt as though I had been pulled from the flames of a burning building! My life had been saved from the downward spiral of depression and I felt though I had been reborn. That feeling lasted about 3 week and I was unaware that I was operating on adrenaline from the sudden shock. As the adrenaline high subsided, I began to spiral  back down into my deep depression but as the days and weeks passed, I could tell something was different. The most noticeable was my anger. At first I just thought I was finally moving through my grief but I was noticing that this anger came with an aggression that made this life-long pacifist want to throat punch or put my knee to a groin. I felt like I would be better if I could just destroy things. Swipe everything off the table and shelves, upend all the furniture and smash all windows and TVs. This anger tinged with violence started to scare me because I couldn't control when I felt or for how long. As the months passed, I also developed irrational fears that wold bring on anxiety attacks. That was what made me start to think I was going crazy. As one who has always been level-headed and calm, it seems 100 times worse because friends and some family would suddenly find themselves on the receiving end of one of the panic attacks and I had neither an explanation for my bizarre behavior  nor an excuse for my inability to control or calm the attack once it had started.

This past November after a particularly emotional weekend away from my day-to-day life, I felt bombarded with every type of emotion. Most of them were good, but a few were difficult and sad but it was probably the first time I had allowed myself to fully feel ANY type of emotion since February 2016. Once those flood gates were opened, I couldn't staunch the flow and that's when I thought about fading away....ceasing to exist. That's when I knew something was very wrong and beyond my control.

It wasn't easy, but I went to see a therapist and after a brief explanation of the crazy and uncontrollable things I was feeling. After 15 minutes the therapist told me I had Acute Stress Disorder.

What is Acute Stress Disorder?  It turns out that it's a mild form of PTSD. In an instant I felt some frivolous little girl. How on earth could I have anything even remotely resembling PTSD? I kept thinking......that can't be. I'm not even the one who lost their son. I'm not the one who is living like half or them was removed when their spouse died. I was just a girl who had always been incredibly stable and sane who had lost her father and her nephew.

My therapist sent me home with an assignment to read about Acute Stress Disorder. As soon as I read a textbook definition, I knew that he was 100% correct with his diagnosis and I felt just a little bit of the craziness leave my weary mind. I have a lot of work to do and the worst part of my panic disorder is the impending sense of loss that I feel looming constantly, just waiting to swoop in and take away another person from my life. It's likely this feeling will not even begin to subside until after April. My subconscious perceives a pattern of loss [my father in Feb 2016; my nephew in March 2017, and ??? in April 2018] Just typing that has my anxiety building and I can feel my limbs shaking as my heart races. 

To any of you who have been on the receiving end of one of these attacks, I am trying to get to each of you personally to apologize and explain. For now, when I feel as though I'm about to lose someone, I focus on the type of loss I'm panicked over. As my therapist points out.....all loss besides death can be regained, found, added back to you. And focusing on the difference in the types of loss have made it much more manageable in my mind.

At times this diagnosis still seems a bit ridiculous but I know I already feel better than I did and I might get through this without losing too many of my marbles. Be kind to each other and be mindful that everyone has something unseen to others that's a burden they must bear on their own each day. 

Friday, December 29, 2017

Private! Keep Out! [Relevant Wisdom from my Lovey Mom]

Those who know me, know how wise my Lovey Mom is. She has always been able to teach important life lessons in simple and effective ways. So many of these lessons/concepts contribute to character and values and have consequently become the cornerstone and foundation of my own life. I can't speak to others and the choices they make, but I share my Lovey Mom's morality tale as it has recently come up more that once on several fronts in my life.

R-E-S-P-E-C-T ones P-R-I-V-A-C-Y 

For as long as I can remember, my Lovey Mom gave me and my siblings absolute privacy. Not only were our bedrooms a personal sanctuary, the expectation of privacy was total; covering every space/aspect of our life. She felt that everyone should feel their personal privacy was important enough to be respected, no matter our age. In so doing, she taught me that every one's privacy is sacrosanct. Knowing that my privacy was respected, I never felt the need to hide anything. 

Lovey Mom's Privacy Principle was based on avoiding a moral dilemma. As an example: If I left a note I'd written to a friend (folded and on a table in the den) and she read it and discovered that my friends and I were planning to skip school and go to the movies...not only would she feel the need to confront me about the plan to skip school, she would also have to confess to invading my privacy and that just wasn't something she ever wanted to do as a parent. [Heather's note: I never would have skipped school. I would have told my mom that everyone was skipping to see a movie and would have asked her to call the school and excuse me for the rest of the day. I know.....but, I was raised by Lovey Mom and it was a wonderfully symbiotic existence.]

Don't misunderstand. If my parents had ever suspected that we were hiding something that would have hurt us or caused us trouble, they would have come to us and given us a chance to come clean. If necessary, I suppose they would have informed us of a need to look through our rooms but that was never an issue that ever came up with any of us.

Because of this lifelong respect of my privacy, I've never been tempted to snoop or pry but I also expect that everyone will extend that same courtesy to me. I also understand that sometimes, things are seen accidentally and can't be unseen.

I suppose I'm writing this as a way to offer amnesty to the few who have found themselves elbow-deep in my private things and are unable to confront me without admitting their own gaffe.  I'd be more than happy to address any concerns or explain what you encountered. I can assure you I have nothing I'm hiding from you.

Saturday, April 22, 2017

A Poetry Month post for my Sweet Sugar Max

April is National Poetry Month and I always try to share at least one poem with my friends and family either through a blog or a post on social media. I have always loved poetry but I also understand that some just don't get it. It makes me a bit sad for them and has often caused me to try and rally the resistant masses and help them learn to love (or at least gain a small appreciation of) poetry. I've even written poetry to help champion this cause and if you're interested, you can read those poems HERE.

This April has been particularly difficult. The sudden death of my 18 year old nephew has me heartbroken but resolute. I will miss him the rest of my life but I am determined to live, love and feel as much as I can since he can no longer do those things. My nephew, Max, was a gifted individual. Having been burdened with high functioning Aspberger's syndrome [1], he was also blessed with a talent for music and art.

Because of Max's love for music, I have decided to share lyrics (poetry set to music, in my opinion) to honor the memory of my sweet Sugar Max and to share some of his talent with those who choose to read and listen. The way I hear music changed forever when my nephew left this world. Although music has always been a huge part of our lives with my entire family, I listen to songs I have loved for years and wonder, "Why didn't I ever share that song with Max? He would have loved it and I would have loved to hear him sing it." The lyric poem I am sharing is one of those I wish I had shared with him. Not only is it one I have loved for decades, the words are poignantly relevant and speak to the loss my family feels so deeply.

If These Walls Could Speak by Jimmy Webb (recorded first by the great Glen Campbell)

If these old walls, if these old walls could speak
What a tale they'd have to tell, hard headed people raisin' hell
A couple in love livin' week to week
Rooms full of laughter, if these old walls could speak

If these old halls, if hallowed halls could talk
These would have a tale to tell, the sun goin' down and dinner bells
And children playin' at hide and seek
From floor to rafters, if these old walls could speak

They would tell you that I'm sorry
For bein' cold and blind and weak
They would tell you that it's only
That I have a stubborn streak
If these walls could speak

If these old fashioned window panes were eyes
I guess they would have seen it all
Each little tear and sigh and footfall
And every dream that we came to seek or followed after
If these walls could speak

They would tell you that I owe you
More than I could ever pay
Here's someone who really loves you
Don't ever go away
That's what these walls would say

They would tell you that I owe you
More than I could ever pay
Here's someone who really loves you
Don't ever go away
That's what these walls would say

That's what these walls would say
That's what these walls would say

If you are still not feeling the lyrical poetry love, here's a great recording of Glen and Jimmy from their album, In Session which I recommend you find it and listen to the entire's solid gold!

Fortunately for his family and friends, Max (short for Maxwell) posted several short videos of himself singing and playing the guitar. I visit and listen often and have come to view his instagram account as my very own Mirror of Erised. [If you're not a Potterhead, that's a nerd reference to something from the Sorcerer's Stone]
Feel free to listen to my Sugar Max. He's not even been gone a month and it feels like an eternity so far.

A post shared by maxwell cookie (@cookmax64) on

A post shared by maxwell cookie (@cookmax64) on

A post shared by maxwell cookie (@cookmax64) on

A post shared by maxwell cookie (@cookmax64) on

A post shared by maxwell cookie (@cookmax64) on

A post shared by maxwell cookie (@cookmax64) on

A post shared by maxwell cookie (@cookmax64) on

1. As a toddler and young child, before Max was diagnosed but had peculiarities unlike any of his siblings. He didn't like to wear underwear, citing when he could speak that the elastic band bothered him. He would complain that the water of a shower hurt and when siblings would respond to him in a normal tone of voice he would say, "quit shouting".

Saturday, December 31, 2016

2016: The Year the Music Died?

I'm not sure if I can adequately express just how great a role music has played in my life. I often talk about the soundtrack of my life and the songs that are inextricably woven with my memories and how certain songs immediately conjure up those memories. Although neither of my parents played any instruments, both were/are consummate music lovers. In February, my Poppy passed away and as I've always been a daddy's girl, it seemed as though part of me passed away also. Consequently, 2016 was a very difficult year for me.

Although one often feels that time grinds to a crawl when experiencing grief, time wasn't standing still and after losing my Poppy, any loss seemed much more personal to me as I was immersed in my grief. Several musicians that shaped my memories and the soundtrack of my life during my teen-aged years through the 80s passed away. David Bowie, Merle Haggard, Prince, George Michael and Debbie Reynolds all impacted my life in different ways through their music and I'm so glad they shared that music with the rest of us. 

[Side note: Although she isn't a musician, Carrie Fisher should be added to this list. I was at lunch with nieces and nephews to whom I have done my best to instill a love for all things Star Wars when I first heard of her passing and I just cried. In 1977, A New Hope was the first "grown up" movie I saw in a theatre on the big screen. From that first chord of the amazing orchestration to seeing that hologram of the first female action hero I'd pretend to be while playing to the destruction of the Deathstar.....this film was life changing for me. May the Force be with her and with us all!]

Just as I was beginning to think that maybe the music really HAD died, I started to think back over all the wonderful memories of me and my Poppy as I was growing up and that soundtrack started to play in the background. Faintly, but it was there. Just as time marches on, the band plays on as well. 

Although my new year won't feel like it has started until February 5th, I hope that all of you are surrounded by love and light and you have music blasting that makes you smile and want to shake your booty off! Remember, until our time is done, we're adding on to that soundtrack of our lives. Make it great, make it memorable and make it SING! 



Tomorrow I will post the track list from Vol I, Soundtrack of my Life: the early years (songs and memories of my Poppy)!

Monday, June 30, 2014

Virtual Mix Tape- Vol. 4, Part 1 Summer Jams!

 I was discussing summer songs with a friend about a month ago. You know those songs that always take you back to that certain summer every time you hear it on the radio. She was lamenting how now that she was an adult, the summer song seemed to have become a thing of the past. I told her that for me, the only thing that had changed with summer songs was how they came about. When I was young and carefree and spent my days hanging out with friends, laying out by the pool, driving with the windows down in the cool of the night with the radio blaring; my summer song had chosen me. Now that the days of summer breaks are long gone, I find have to be the one to choose my summer song. That's just the way life changes and evolves and it doesn't make my summer song any less memorable. With that in mind, I offer the fourth installment of my virtual mix tapes....full of summer songs past and present. All of these songs are tied up with so many great summer memories, I hope you enjoy them as much as I do!

Forever- Haim

Your Love- The Outfield

Forever Yellow Skies- The Cranberries

Steal My Sunshine- Len

Breakfast at Tiffany's- Deep Blue Something

Chandelier- Sia

Ray of Light- Madonna

Free Fallin- Tom Petty

Raspberry Beret- Prince

No video with music available, click HERE for a Spotify link

Beautiful Day- U2

The Tide is High- Blondie